Friday, November 13, 2009

Rett on the News

If you are interested in learning more about Rett Syndrome, KSL posted the story that ran last night on their website: http://www.ksl.com/?nid=148&sid=8649182. The doctor that they interviewed (Dr. Rope) is Becca's geneticist.  They talk about some interesting stuff!

2 comments:

  1. Becca is BEAUTIFUL! My daughter Brooklyn is four and has Rett Syndrome, stop by our blog if you would like, I have lots of Rett informational sites on there you might like to read, plus links to other blogs of Rett families, which I would love to add yours, drop me an email and let me know if that might be ok!
    Kelly

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  2. Hi! My almost 9 year old daughter has Rett Syndrome as well. I just watched the videos you linked to -- Dr. Rope does not mention the study from 2007 that reversed the symptoms of Rett in mice. Here is a link to that news if you can forward it on to him:
    www.girlpower2cure.org/files/Hope_raised_for_reversing_severe_childhood_disease__Reuters.pdf

    I can send you the actual paper -- you should check out this website: www.ReverseRett.org.

    Our organization is www.GirlPower2Cure.org.

    Feel free to contact me! I would love to get to know you and Becca more! Take care!

    Ingrid Harding
    ingrid@girlpower2cure.org

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